This is Not Just Fatigue
Myalgic Encephalomeyelitis, a disease commonly known as “Chronic Fatigue Syndrome” or “ME/CFS”, is a severely debilitating physiological illness. Of those suffering, 75% are unable to attend school or work, and 25% are completely homebound or bedbound with a quality of life comparable to that of congestive heart failure and cancer. Yet, there are no FDA approved treatments, biomarkers, or diagnostic tests. And in fact, as many as 45% of the Long COVID community fit the case definition for ME/CFS.
The purpose of this website is to help us understand—the shameful history of neglect, the crippling reality of the condition, and what we can and must do to help.