Video Series
Explore a ten part, documentary style, short form video series on ME/CFS. Each video tackles a particularly challenging aspect of living with the disease.
You Could Be Next
Research tells us that ME/CFS affects people of all ages, races, and socioeconomic groups. Everyone is at risk. You could be next.
Spend A Day With Me
Forget the medical jargon. We asked people with ME/CFS what it’s like to live with the disease in their own words. Here’s what they had to say.
You Have No Idea How Serious This Is
In 1988, the CDC named the disease “Chronic Fatigue Syndrome”, which set in motion decades of stigmatization of those suffering. While the US government currently uses the term “ME/CFS” on their websites, the trivialization of the condition due to the name still remains. Let’s confront this head on.
Get Out Of My Office
With fewer than ⅓ of medical school curriculums currently addressing ME/CFS and less than ½ of medical textbooks containing information about the disease, it’s undeniable that ME/CFS has slipped through the cracks of our modern medical system. This needs to change in order for people with ME/CFS to get the help that they need.
POV: I Went Over My Energy Limit
Contrary to popular belief, the hallmark symptom of ME/CFS is not fatigue, but rather post exertional malaise. PEM, or a crash, can occur at any time, after any sort of physical, emotional, or mental exertion. Many people with ME/CFS describe PEM as their most limiting symptom.
Nobody Believes Me
Many people living with ME/CFS are dismissed and not believed, oftentimes even by those closest to them. That in and of itself can be a traumatic experience, serving to further exacerbate the pain of the disease, and highlight the lack of support of those affected.
It’s Not Hysteria; It’s Sexism
Is it a coincidence that three times more women than men are living with ME/CFS and ME/CFS is our country’s most underfunded disease, with respect to the severity of the disease and the number of people affected? No.
Explain ME/CFS To Me
What is ME/CFS? We asked some experts to describe the disease in layman’s terms. Here’s how they responded.
When Friends And Family Don’t Understand
Living in a society that fails to acknowledge the pain and severity of ME/CFS is challenging. Friends and family might not understand the disease, and watching peers continue on with their lives, while the disease takes its toll, can be torturous.
All Talk, No Action
How do we find a cure for ME/CFS? Stop the lip service and get the government to fund clinical trials for the disease. It’s time to sound the alarm on this health crisis.